Thanks guys for the quick resposes.
So that means I have to be very careful during winter. My condition is not very bad now. But now i'm afraid of the winter here. Its my first year in US. The condition in India is entirely different. i will try to stay away from cold and use glouses.
Also if you can forward me those 2 missed out links that will be great. I joined the forum last day only.
But for the last 4-5 years i was feeling isolated kindof i'm the only one with his desease. Now that i found you guys i'm happy.
that we can atleast share the Best practises and get know any updates on this in medicine.
Also one question. My understanding is that this deasese will stop @22-23 age and after that muscles wont wasten again. Is that correct? Anyone who has this desease for long time had the wastening got stopped atleast stable?
Wering a cervical collar will help only if you do that from 18-22. when you have the wastening goes on right? now that we dont need to wear that right?
Thanks again for your time.
Hope we will be able to see atleast one among us get rid of this and that will be the happiest moment for me.
Thank You
joseph